Information System Literacy Monitoring Health of Hemodialysis Patients: A Health Education Case Study

Lutfatila Masitoh(1), Cahya Tri Purnami(2), Aris Puji Widodo(3),


(1) Faculty of Public Health, Universitas Diponegoro, Indonesia
(2) Faculty of Public Health, Universitas Diponegoro, Indonesia
(3) Faculty of Public Health, Universitas Diponegoro, Indonesia

Abstract

Limited health literacy is associated with faster kidney damage. Kidney failure patients are exposed to a lot of new information about the disease and its treatment, which often results in ineffective communication between the patient and the provider. Increasing the amount, timing, and individualization of information received has been identified as a priority in hemodialysis treatment at health centers. This literature review aims to determine the literacy of the Hemodialysis Patient Health Monitoring Information System. This research is a scoping review, using 4 databases, namely Google Scholar, Ebsco, Pro Quest, and Science Direct. The stages and flow of research article selection used PRISM Flowchart (Preferred Reporting Items For Systematic review and Meta-Analyses), and to assess the quality of the article, researchers used a checklist from the Joanna Briggs Institute. Two themes and five sub-themes were found among the 8 creening articles, namely: (1) Hemodialysis Perspective; (a) Hemodialysis Patient Perspective, (b) Professional Perspective, (c) Anxiety Level at the Beginning of Hemodialysis Treatment. (2) Monitoring the care of hemodialysis patients; (a) Use of Technology in improving compliance and self-management, (b) Health literacy level of hemodialysis patients. Health literacy technology tools such as hemodialysis patient-specific mobile applications are reliable and well validated. Patients who are aware of and understand their disease have better knowledge for better nutritional diet fulfillment.

Keywords

Health literacy, Information System, Hemodialysis Patient, Health Education

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References

Aiyegbusi, O. L., Kyte, D., Cockwell, P., Marshall, T., Dutton, M., Walmsley-Allen, N., ... & Calvert, M. (2018). Development and usability testing of an electronic patient-reported outcome measure (ePROM) system for patients with advanced chronic kidney disease. Computers in Biology and Medicine, 101, 120-127.

Alfiannur, F., Nauli, F. A., & Dewi, A. P. (2015). Hubungan antara kecerdasan spiritual dengan tingkat kecemasan pasien gagal ginjal kronik yang menjalani hemodialisa [Doctoral dissertation, Universitas Riau].

Arksey, H., & O’Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19-32.

Boonstra, M. D., Reijneveld, S. A., Westerhuis, R., Tullius, J. M., Vervoort, J. P., Navis, G., & de Winter, A. F. (2022). A longitudinal qualitative study to explore and optimize self-management in mild to end-stage chronic kidney disease patients with limited health literacy: Perspectives of patients and health care professionals. Patient Education and Counseling, 105(1), 88-104.

Cassidy, B. P., Harwood, L., Getchell, L. E., Smith, M., Sibbald, S. L., & Moist, L. M. (2018). Educational support around dialysis modality decision making in patients with chronic kidney disease: Qualitative study. Canadian Journal of Kidney Health and Disease, 5, 2054358118803323.

Cavanaugh, K. L., Osborn, C. Y., Tentori, F., Rothman, R. L., Ikizler, T. A., & Wallston, K. A. (2015). Performance of a brief survey to assess health literacy in patients receiving hemodialysis. Clinical Kidney Journal, 8(4), 462-468.

de Oliveira, J. G. R., Askari, M., da Silva Junior, G. B., de Freitas Filho, R. A., & Vasconcelos Filho, J. E. (2019). Renal health: An innovative application to increase adherence to treatment through self-monitoring for patients with CKD and provide information for the general population. Kidney International Reports, 4(4), 609-613.

El Khoury, C. F., Karavetian, M., Halfens, R. J., Crutzen, R., El Chaar, D., & Schols, J. M. (2019). Dietary application for the management of patients with hemodialysis: A formative development study. Healthcare Informatics Research, 25(4), 262-273.

El Khoury, C. F., Crutzen, R., Schols, J. M., Halfens, R. J., & Karavetian, M. (2021). Adequate management of phosphorus in patients undergoing hemodialysis using a dietary smartphone app: Prospective pilot study. JMIR Formative Research, 5(6), e17858.

Febyana, F., & Nursamsiyah, R. (2023). Tata kelola rekam medis berbasis elektronik dalam monitoring pasien hemodialisa di RSUD Al-Ihsan. Jurnal Indonesia: Manajemen Informatika dan Komunikasi, 4(3), 924-935.

Ferreira da Silva, P., Talson, M. D., Finlay, J., Rossum, K., Soroka, K. V., McCormick, M., ... & Bohm, C. (2021). Patient, caregiver, and provider perspectives on improving information delivery in hemodialysis: A qualitative study. Canadian Journal of Kidney Health and Disease, 8, 20543581211046078.

Here, R. L., Abdussalaam, F., & Sari, I. (2023). Desain tata kelola rekam medis dalam sistem pelaporan pasien hemodialisa dengan metode waterfall studi kasus RSUD Al-Ihsan. Media Bina Ilmiah, 17(10), 2907-2912.

Hosseini, A., Jackson, A. C., Chegini, N., Dehghan, M. F., Mazloum, D., Haghani, S., & Bahramnezhad, F. (2023). The effect of an educational app on hemodialysis patients’ self-efficacy and self-care: A quasi-experimental longitudinal study. Chronic Illness, 19(2), 383-394.

Hueso, M., Vellido, A., Montero, N., Barbieri, C., Ramos, R., Angoso, M., ... & Jonsson, A. (2018). Artificial intelligence for the artificial kidney: Pointers to the future of a personalized hemodialysis therapy. Kidney Diseases, 4(1), 1-9.

Husna, I. W., Yahya, Q. N. Q., Widiyani, M., & Sholihin, S. (2020). Effectiveness of self-management education based on information technology (IT) in chronic kidney disease patients. Jurnal Ners, 14(3), 397-401.

Kementerian Kesehatan Republik Indonesia. (2022). Kasus gangguan ginjal akut terus menurun sejak 18 Oktober, sehat negeriku.

Kementerian Kesehatan Republik Indonesia. (2018). Ginjal kronis.

Khamis, S. S. A., Emara, M. M., Elnashar, M. S. A., Khalil, M. A. M., & Kasemy, Z. A. (2021). Development of health literacy for regular hemodialysis patients in Menoufia Governorate: A cross-sectional study. Open Journal of Nephrology, 11(2), 199-216.

Kurniawan, Y., & Yani, S. (2023). Perspektif pasien gagal ginjal terminal (GGT) yang menjalani terapi hemodialisis ditinjau dari konsep efikasi diri (self-efficacy). Jurnal Vokasi Kesehatan, 2(1), 1-6.

Levac, D., Colquhoun, H., & O’Brien, K. K. (2010). Scoping studies: Advancing the methodology. Implementation Science, 5, 1-9.

Luyckx, V. A., Al-Aly, Z., Bello, A. K., Bellorin-Font, E., Carlini, R. G., Fabian, J., ... & Stanifer, J. (2021). Sustainable development goals relevant to kidney health: An update on progress. Nature Reviews Nephrology, 17(1), 15-32.

Maulidia, M. F., Besral, B., & Prabawa, A. (2023). Perancangan sistem informasi pelayanan dan administrasi klinik (studi kasus: Klinik X di Kabupaten Malang). J-REMI: Jurnal Rekam Medik dan Informasi Kesehatan, 4(4), 265-277.

Murali, K. M., Mullan, J., Roodenrys, S., Hassan, H. C., Lambert, K., & Lonergan, M. (2019). Strategies to improve dietary, fluid, dialysis or medication adherence in patients with end-stage kidney disease on dialysis: A systematic review and meta-analysis of randomized intervention trials. PLoS ONE, 14(1), e0211479.

Pérez-Morales, R., Buades-Fuster, J. M., Esteve-Simó, V., Macía-Heras, M., Mora-Fernández, C., & Navarro-González, J. F. (2022). Electronic patient-reported outcomes in nephrology: Focus on hemodialysis. Journal of Clinical Medicine, 11(3), 861.

Peterson, V. M., Zhang, K. X., Kumar, N., Wong, J., Li, L., Wilson, D. C., ... & Klappenbach, J. A. (2017). Multiplexed quantification of proteins and transcripts in single cells. Nature Biotechnology, 35(10), 936-939.

Priatna, A., Yusuf, A. M., & Elanda, A. (2021). Perancangan sistem informasi instalasi hemodialisa pada rumah sakit umum daerah Karawang. Elkom: Jurnal Elektronika dan Komputer, 14(1), 82-89.

Rasmiati, & Mulyono, S. (2022). Telehealth pada pasca rawat pasien gagal ginjal kronik literature review. Jurnal Cakrawala Ilmiah, 1(5), 925-930.

Renggani, A. T. (2023). Implementasi rekam medis elektronik pada unit kemoterapi, fisioterapi, dan hemodialisa di RSUD Panembahan Senopati Bantul. Prosiding Seminar Nasional Rekam Medis & Manajemen Informasi Kesehatan.

Saiednejad, Z., Mirbagher Ajorpaz, N., & Aghajani, M. (2018). Application of empowerment program on self-efficacy of patients under hemodialysis: A clinical randomized controlled trial. Journal of Critical Care Nursing, 11(3), 1-9.

Schiffer, L., Gertges, R., Nöhre, M., Schieffer, E., Tegtbur, U., Pape, L., ... & Schiffer, M. (2021). Use and preferences regarding internet-based health care delivery in patients with chronic kidney disease. BMC Medical Informatics and Decision Making, 21(1), 1-8.

Sheikh, A., Anderson, M., Albala, S., Casadei, B., Franklin, B. D., Richards, M., ... & Mossialos, E. (2021). Health information technology and digital innovation for national learning health and care systems. The Lancet Digital Health, 3(6), e383-e396.

Taylor, D. M., Fraser, S., Dudley, C., Oniscu, G. C., Tomson, C., Ravanan, R., ... & ATTOM investigators. (2018). Health literacy and patient outcomes in chronic kidney disease: A systematic review. Nephrology Dialysis Transplantation, 33(9), 1545-1558.

Tricco, A. C., Lillie, E., Zarin, W., O’Brien, K., Colquhoun, H., Kastner, M., ... & Straus, S. E. (2016). A scoping review on the conduct and reporting of scoping reviews. BMC Medical Research Methodology, 16, 1-10.

Veinot, T. C., Gillespie, B., Argentina, M., Bragg-Gresham, J., Chatoth, D., Damron, K. C., ... & Saran, R. (2023). Enhancing the cardiovascular safety of hemodialysis care using multimodal provider education and patient activation interventions: Protocol for a cluster randomized controlled trial. JMIR Research Protocols, 12(1), e46187.

Wei, C. J., Shih, C. L., Hsu, Y. J., Chen, Y. C., Yeh, J. Z., Shih, J. H., & Chiu, C. H. (2021). Development and application of a chronic kidney disease-specific health literacy, knowledge, and disease awareness assessment tool for patients with chronic kidney disease in Taiwan. BMJ Open, 11(10), e052597.

Yulisetyaningrum, Y., Dedi, B., & Yunani, Y. (2023). Pengalaman pasien hemodialisa yang terpasang arteriovenous fistula (AVF) berdasarkan perspektif Kubler Ross di RS ‘Aisyiyah Kudus. Jurnal Ilmu Keperawatan dan Kebidanan, 14(2), 464-473.

Zhianfar, L., Nadrian, H., & Shaghaghi, A. (2020). Enhancement of adherence to therapeutic and lifestyle recommendations among hemodialysis patients: An umbrella review of interventional strategies. Therapeutics and Clinical Risk Management, 233-243.

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